Showing posts with label everyone loves little angels. Show all posts
Showing posts with label everyone loves little angels. Show all posts

Friday, December 31, 2010

2010



It’s been a tough year…

2010 has found me enduring my first full year without my darling little Ella physically by my side. Although the pain of losing her appears to be sometimes more manageable, it is still very much unbearable when I face the reality, daily, that my life goes own and hers lives in my heart…

It has meant re-living for the first time the last few months of Ella’s short life. Each day etched in my memory… each bringing back its load of charged emotions...

2010 was the year of the Vancouver Olympics... The very reason I found myself moving to the west coast 5 years ago... A time which was meant for celebrations... A time which caused more pain than pleasure... because my heart was no where near festive... And seeing young babies all Canadianized only confirmed what Ella and I were not to experience...

It brought a dreaded first angel anniversary... And a second memorial birthday… Both, as warned by my veteran angel moms, were not as sad as the anticipation of each. Coupling the events with fundraisers kept me focused and busy enough that the moments were not only bearable but somewhat enjoyable… though the days before and after were still very tough to get through…

2010 has also seen me fail at more attempts to become a mom once again… And it has allowed the formal confirmation that Ella had a genetically-linked illness transmitted from me to her… I know what you are thinking… Those failures may have been my angel’s way of protecting her maman… but it does not make me feel any better…

With 2010 came the difficult realization of one more failure…. That of my relationship to Ella’s dad… And with it came the decision to finally put myself first, and separate… hoping Ella would understand...

2010 has brought its share of tears, from me and from Ella’s loved ones… but it also has brought laughter… At the very thought of the tricks that she keeps playing on everyone…

Unfortunately, 2010 uncovered more news of illness… And though I remain healthy, someone I love with all my heart is not so blessed… And just like Ella’s illness, this is they type of illness you hope you can beat… And so, we hope…

And yet... 2010 has been a good year…

It has found me become an advocate for families facing the disease that took Ella from me…

It meant a successful year back at work, full-time – after being away for nearly 18 months altogether rom the moment I went on early medical leave to the time I took to try to mend my heart…

In 2010, finally, came the launch of Everyone Loves Little Angels’ brand, a precious gift of talent from my friend Sophia Szeto…

2010 not only brought a confirmed diagnosis, it became the stepping stone for more medical analysis and, more importantly, a draft to an article to be published which will shed light and educate the medical community about PVNH...

It has culminated in over $11,000 raised in 21 months of fundraising for BC Children’s Hospital… And another $1,600 for Everyone Loves Little Angels… In addition to the couple of thousand dollars for Canuck Place, Children’s Miracle Network and Make-A-Wish Foundation collectively through various other activities…

With 2010 came the official first act of ELLA’s Teddy Program where super huggable teddy bears and glass angels were offered to parents who lost a child…

It also has brought me several times back to Montréal to be closer to my family…

2010 marks the first time I received a scholarship from CORD to attend a rare disease conference as the founder of Everyone Loves Little Angels and the PVNH support group…
And my first Action Day on Parliament Hill...

And among the best that came out of 2010 were the friendships, both old and new… Friendships that stand the test of time. Friendship that pick up where they were lost at sea anywhere from 20 to 30 years ago - and new friendships based on the strongest bonds… the love of a parent… the commonality of a rare illness…

So here comes 2011… So long 2010…

And aside from wishing my family and my friends nothing but good health, I am making exception this year and breaking tradition - wishing something for me… A good donor with a special egg… Just one… that takes… And for Ella… enough kind souls to join together to offer a Make-A-Wish in her honour by the time her 3rd memorial birthday comes…

ELLA - Everyone Loves Little Angels

Saturday, August 14, 2010

Blessing for Ella's Birthday



As I sit to write down my thoughts
It occurs to me that I have not
Stopped long enough in the last week
To actually say thank you

Thank you to friends and family
For their love and support
Today and every day

Thank you to my friend Helene
And to her staff
Not only for donating her yoga studio
But also for hosting a class by donation
So that I can help families at BC Children's Hospital
Live a more comfortable life

Thank you to Danielle
For the gift of beautiful flowers
And that of her presence
Yoga-ing & celebrating Ella
On her birthday

Thank you to my Facebook crew
For sending wishes and words of support
For what I anticipated would be a tough day

Thank you to my PVNH families
For your words of kindness

Thank you to my friend Emma...
For donating some of Jonah's favorites...
Books which will be offered to families...
At Children's Hospital this week...

Thank you to Mother Nature
For sending me some rain
On Ella's birthday
To make sure I took time to stop
Relax
And just breathe

As I sit and write down my thoughts
All I can say is thank you
To all of you
And most importantly
Thank you
To Ella for playing
With Maman on your 2nd birthday

ELLA - Everyone Loves Little Angels

Sunday, August 1, 2010

Gratitude on August 1st, 2010


Someone who recently came into my life...
Told me today...
You cannot have gratitude without grief...
And you cannot experience grief without gratitude...

I could not agree more...

Today...
Just like yesterday...
I am grateful...

I am grateful for many...
Many people...
Many moments...
Many memories...

I am grateful for one...
One angel...
One love...
One life...

Today, and everyday, I do...
Count my blessings...
And express...
My gratitude...

But not until today...
Did I make it this public...

And so it goes...

Today I am grateful for the sun...
The warmth...
The peace I felt...
After a good cry...
By my daughter's grave...

Today I am grateful...
For my mom...
And my dad...
For my sister...
My brother...
Their spouses...
And chidlren...

Today I am grateful...
To have held a sweet baby boy...
Heard him laugh...
Seen him play...

Today I am grateful...
For friends who know...
Just how to lend an ear...
And bring back my waivering faith...
To show me that I am strong...

Today I am grateful...
Fo strangers who show support...
By joining in a cause...
And paying it forward...

Today, I am grateful for my amazing friend Yvonne...
And her husband Bart Bridge...
And for Wanda and Ivan Ravnic...
For Deborah Power-Demille...
And Francesca Benedetti...
And Deby Gulleckson...
And for Arlene and Dwaine Bridge...
All of whom kindly donated in memory of Ella...

Today, I am grateful...
For Nikki, on the other side of the world...
Who's encouraging words always...
Lift me up...

Today, I am grateful for Helene and the crew at Yogacara...
For Simone and the team at Solarice Spa...
Both of whom are offering their services...
To raise funds for BC Children's Hospital...

I am grateful for my friend Jennifer Terzi in Ottawa...
and for my friend Marie-Paule Dupont in Gatineau...
Who not only support me from afar...
But generously donate in memory of my girl...

Today I am grateful...
For so many wonderful people...
Who give me the strength...
To see another day...


ELLA - Everyone Loves Little Angels

Monday, July 19, 2010

It Only Takes One...


It only takes one...
Big heart...

It only takes one...
Kind soul...

To make a difference...
And brighten...
Someone else's day...

It can come in the form of a smile...
A gentle hand on your back...

It may show up when you least expect it...
From someone you don't know...
Someone who understands your fears....
And shares your pain...

It may be handed out
As a strength coin...
Because it is clear...
You need it...

Or as a hug without a need for words...
To catch you as you spin...
After having the wind knocked out of you...

It will surprise you...
And bring you to tears...
While filling your heart...
With hope...
And a sense of joy...

It can come from your family...
Your friends...

From a complete stranger in the street...
Or from another from across the world...
From a group with common misfortunes...
Or another who just wants to help...

It can materialize...
As one who finds himself...
Facing a similar faith...

It can be done in person...
Or by phone...
By email...
Or through social and traditional media...

It may be monetery...
It may be wordy...

But it is always done...
With purpose...

I was fortunate...
To come across...
The path...
Of one big heart...
The path...
Of one kind soul...

And so...

ELLA...
Everyone Loves Little Angels...
Was born...

Out of my loss...
To fight my grief...

To give a sense...
To my baby being taken from me...

To ensure...
Ella did not die in vain...

To keep her alive...
In the hearts of those...
She touches with her story...
Daily...

To pay it forward...
And bring support...
Maybe some peace...
Onto others...

As it had been done...
For Ella and for me...

It only takes...
One simple gesture...

From you...
From me...

To help sick kids...
And their families...
ELLA's Foundation will one day be...

To support bereaved parents...
ELLA's Wings...
Spread large and wide...

To manage symptoms...
Improve quality of life...
And maybe one day...
Find a cure...
ELLA's Hope...
Is that of those facing rare diseases...

But specifically...
It only takes one...
To restore hope to many...

Ella's Hope...
To eradicate...
One rare disease...

The rare disease...
That took you away from me...

ELLA - Everyone Loves Little Angels